Saturday, November 28, 2015

Being Prepared for the Hospital

Here is a blog I wrote for Preemie Babies 101. It's RSV and flu season, so I thought it would be a good idea to repost it here too.


Two years ago my twins spent 4 months in the NICU. It was a long journey and going to the hospital every single day for 4 months is an emotional feat in itself. My twins were discharged 2 weeks apart, and the day my Elizabeth could finally leave, I wanted to run home and never look back. If only it was that easy.

As much as I never wanted to step back into the hospital again, it just wasn’t possible. Since being discharged, we have had a few hospital stays due to lung issues and surgeries. Some of the stays were expected and some of them were not.

Running through your house trying to pack for an unexpected stay is challenging and also scary. Your mind will be racing and it’ll be a challenge trying to get your thoughts together. Whether you are getting ready for an expected stay or packing on the fly, here are 10 ways to prepare if you are returning to the hospital after a NICU discharge.

In the hospital recovering from lung issues

In the hospital recovering from lung issues

  1. Pack your little one’s pillow and or their favorite blanket. There is something about letting them sleep with something familiar that helps them get a better night’s sleep.
  1. Pack a bag of toys. Many hospitals have toys for children to play with and that’s great. If you are at the hospital alone with your little one, then you may not want to leave their room long enough to find them a toy. I know my daughters never want me to leave them. Just pack a bag and bring it with you. Sometimes if I know in advance we are headed back to the hospital, I’ll buy her something new and give it to her at the hospital.
  1. If your baby loves a certain vibrating chair or small swing bring it with you. I know this sounds kind of silly, but if you can fit it in the car bring it along. My daughter had to go back to the hospital shortly after discharge from the NICU because she had a hernia. I brought her favorite vibrating/soother chair along, and it was certainly a life saver.
  1. Bring their favorite snacks with you. Hospitals do have a cafeteria but if you have a picky eater, a hospital stay isn’t a time to try new foods. You will want to give them what’s most familiar and what you know they will eat. Remember to check with their doctor or nurse first to make sure they do not have any food restrictions before giving them something to eat.
  1. Pack all of your necessary chargers. That includes cell phones and tablets. You’ll have phone calls to make so you will want your phone to stay charged.
  1. Pack a bag of clothes for you and some clothes for them. If a hospital stay is unexpected and you are throwing clothes together quickly for yourself, pack clothes for your little one too. You will want them to have clean clothes to leave the hospital in. Slippers always come in handy too.
  1. Hospital stays are not the time to wean off of a pacifier or the bottle. You can fight that battle when they are good and healthy again.
  1. Bring along a list of current medications and their doctor’s phone numbers. If you find yourself at a hospital that is not your regular hospital this will be good to have with you.
  1. If they listen to music when they fall asleep at home then bring it with you to the hospital. You want to try to get as close to their routine as possible.
  1. Don’t forget your toiletries. Hospitals usually sell toothpaste, toothbrushes, and hairbrushes but they can be expensive. If you need it in a pinch it’s convenient, but if you have time to pack your own toiletries it will be better on your wallet.

 

Going back to the hospital is always a stressful and scary time. If it is last minute, knowing what you want to grab ahead of time and being a little prepared will make it a little easier. If any parents out there have any other tips please share them in the comments section. We are here to help each other and any ideas are always helpful.

Friday, November 20, 2015

Preemie Diapers

I posted this before but I just had to share this picture again because it demonstrates the size difference between a newborn diaper and a micro preemie diaper. 



 Micro preemie diapers seriously look like small doll diapers. I am not afraid to admit that I honestly didn't even know they made diapers this small before I had the girls. 

I can still remember how amazed I was when I watched the NICU nurses change their diapers for the first time. They moved so quick and they were never afraid to move them around despite how fragile they were. 

I can also remember the first time I changed a diaper. My first diaper was Abigail's. Her nurse that day was Carrie and she was so nice and supportive. I was very terrified to do it the first time. It's a horrible feeling to be afraid to touch your child because you don't want to hurt them.  I had changed babies diapers before, but nothing like that. 

As time went on I became more confident and with practice I wasn't so scared. It wasn't how I imagined my first diaper experience would be, but that's okay. 

Looking at this picture it's hard for me to even believe Abigail and Elizabeth actually wore those little diapers. Looking at this really reminds me how far they have come and it brings back so many memories. 

Tuesday, November 17, 2015

World Prematurity Day

Today is World Prematurity Day! 

In 2014 just over 9% of births were premature according to the March of Dimes. Premature births are births before 37 weeks. I would literally have given my arm, foot, anything for my girls to have made it to 37 weeks. I have learned a lot about preemies and what it takes for them to make it in the hospital. Today is a day to recognize how amazing these little fighters are. 

Today I thank the nurses and doctors that work so hard each day to save babies that are born way too early. You all do amazing work and I thank you from the bottom of my heart! Today I am reminded of the strength of my girls. They both are truly my heroes! 

It is hard to believe that 3 short years ago my girls were in the NICU fighting to live. I feel especially blessed today. 

Wednesday, November 11, 2015

My Journey

On October 25 my life changed in ways I would have never imagined. To say my journey was a roller caster can't even begin to describe it. 

My journey begins with trying to get pregnant. It took 6 IUIs and 2 IVFs to finally get pregnant. Shots after shot and appointment after appointment finally paid off after months of heart ace and disappointment.
 To this day my weekly trips to the infertility doctor mark as one of the most depressing times of my life. Sitting in a waiting room full of women of all races and ages working towards the same difficult goal of getting pregnant was something I'll never forget. 

When I finally got the call from the nurse that I was pregnant I couldn't believe it. I wanted to be excited, but I was also a nervous wreck. My first IVF ended in a miscarriage, so I didn't want to get my hopes up again. I was so envious of women who could just take a home pregnancy test, found out it was positive ad cherished in the moment of excitement and joy.
Even with the good news I still was apprehensive because I knew how it felt to be let down. 

Finally it was ultrasound day. The day I would learn the most exciting news of my life and the moment it finally felt official.  I could
see that I was pregnant with my own eyes. As I got my ultrasound I learned I was going to have twins. Twins! I was pregnant and I was having twins! My heart instantly filled with some much joy and love that I thought it might explode. I loved them the moment I saw them. There they were, Baby A and Baby B.

My pregnancy wasn't an easy one. I had appointments every other week with my regular OBGYN and a Fetal Medicine doctor. They followed me closely because baby B was small. Both doctors spent a lot of time explaining to me that they were very concerned that Baby B wasn't growing enough
and according to their medical opinion they didn't believe that
baby would make it. I cried just about every week. Every week I would go and Baby B would have a heart beat but they still would tell me not to get my hopes up. I would feel a kick and just pray that one of those kicks was coming from my precious Baby B. 

When I was just 22 weeks pregnant I started bleeding and called my doctor. I was instructed to go to the emergency room immediately. I was scared out is my mind and immediately thought the worst. I tried so hard to get pregnant and I just couldn't lose them now.  

I was hooked up to all the monitors and I was seen right away by the doctor. The doctor calmly told me that I was having contractions. Contractions?! How could I be having contractions I thought. I wasn't even in the 3rd trimester yet. The doctor told me that I was going to need to be medivaced to Baltimore to be at a hospital with a NICU incase I delivered. They pumped me up with medicine to stop my labor and off I went to Baltimore. I had no idea at the time, but this day would mark as the first day of a 5 month period that I would be in a hospital. 

I made it on full bed rest in Baltimore for 3 weeks and delivered at 26 weeks 4 days. 
My twins were micro preemies that weighed 1 pound 11 and 2 pounds 4. They were two strong little girls that were bond and determined to fight. I didn't even know the term micro preemie existed until I had two of my own. 

My girls spent 4 months in the NICU. That year Halloween, Thanksgiving, Christmas, and New Years were spent in the hospital. I went to see them every day. I learned everything I could. I tried to make it to every doctors round and learned all the nurses names that took care of my daughters. 

The NICU life is a hard one. There are so many turns and ups and downs it's enough to make your head spin. When one was doing well the other wasn't. When one need a blood transfusion the other one needed one shortly after. I learned about oxygen machines, heart rate monitors, brain bleeds, heel sticks, isolates, the importance of breast milk and everything in between. 

My fondest memory was when the NICU nurses surprised my husband and I on Christmas Eve and coordinated to have my girls brought together. They hadn't been together since I was pregnant. During their NICU stay they were down the hall from each other. I spent my day walking from room to room to visit them both. Having my family together in one room was the most precious memory I have. This is a testament to how wonderful and dedicated NICU nurses are. They are truly special people who work a very difficult job. 

My girls finally came home from the NICU after 4 long months. The moment we were all home I sat in a chair and held them both together and I remember thinking, now for the next journey, raising twins. 

Twins is truly something special. Unless you have twins or other sets of multiples you really can't begin to understand what it is like. I think that's why whenever I see other sets of twins out and about I always feel the need to say hello. Likewise, parents of multiples come up and say hello to me too. 

Twins is a lot of work, but there is also something so special about seeing two children growing up together and reaching milestones together. 

In three years of having twins I learned a few things. Here are the most important things.

Firstly get them on a night time schedule as soon as possible.  My girls have always slept in the same room together and I have always put them down at the same time. If you have infants that still are eating over the course of the night then when one wakes up to eat, just go ahead and see if the other one wants to eat too. If you don't at least try to see if the other one will eat, you could possible be up the whole night alternating feedings. 

Secondly be prepared to have baby gates all over your house. Here is the thing about twins, if one hasn't figured out how to get into something the other one will. They will learn from each other and share ideas on how to get into stuff. They learn the art of teamwork quickly.  Remember it's two minds working together. They will also be ahead of you, but that is just one way having twins is something amazing. 


Everywhere you go people will stare at you. My twins aren't even identical, but people always just know they are twins. People are just fascinated by them. Don't be alarmed but strangers will ask you random questions about them.
I guess because you have a unique situation people feel like they have the right to ask you about it. I have had all sort of questions but the most common ones are "is one easier than the other" or "is one the boss." Well they are toddlers now so just being with one toddler can have it's  challenges so, no, their isn't an "easier one," and all toddlers want to think they are the boss so no one isn't the boss over the other.   The good news is that, I can leave my house in sweatpants and my hair in a messy bun and It wouldn't matter because my twins will always be the one thing people will look at before me now.

You will change an enormous amount of diapers. You will always have to pack a very large diaper bag. And if you are alone with them with no other adult around you will always be out numbered. The amount of stuff you acquire with twins is ridiculous. Be prepared for your home to be a little disorganized for a bit. Don't worry though, you'll get your house back when they get a little older. 

Having twins will create stress on your relationship with your spouse. It could be financial stress because raising twins is expensive. It may be stressful because one thinks they do more work than the other. Just remember that you both love each other and it will get easier. When my girls came home from the NICU, my husband and I soon took on roles or jobs. It helped us get the job done. As they get bigger it does become less stressful and easier. My husband and I recently took one of my daughters to a doctors appointment together. I jokingly said to him "you know this is really easy." But with that said watching two kids grow up together is something amazing.  Watching them hold hands and talk to each other melts my heart. Watching them play together and learning their likes and dislikes becomes special memories. 


My journey wasn't easy and it still isn't easy, but I feel so lucky to have gotten this far. My girls are growing, healthy, and happy. 











Saturday, November 7, 2015

A Bunch of Firsts

Last week the girls had a lot of firsts. They started PreK, rode a bus for the first time, and went on their very first field trip. 

The girls got into PreK with an IEP, due to their physical disabilities. I really like their teachers and I believe it will really help them to prepare socially, physically, emotionally, and cognitively for kindergarten. They will be the youngest in their class, but I think the pros out numbered the few cons to starting PreK your 3 year old year by a long shot.  I am so proud of them. They didn't even cry their first day. 

Thursday and Friday they rode
The bus to school. Their old physical therapist with Infants and Toddlers met them at daycare to teach Elizabeth how to get on and off the bus using the handrails. They loved the bus. They talked about it all weekend. 

Friday the girls had a field trip to the pumpkin patch. My husband and I both were a chaperone. It was great to meet some of their classmates. 

I'm looking forward to seeing what the school year brings.